Campaign Directors and Working Committees

 Background and Project Rationale

 Project Description

 Accomplished Activities Related to the Global Campaign

 Link to the Global Campaign Against Epilepsy

1. Production of Multimedia Educational Materials
   
   

   1. Video : "Journey into the Mind" , produced February 2001
      (This is a sixteen minute teaching video in English featuring Filipino neurologists discussing the etiologies,, clinical manifestations, treatment, and social consequences of epilepsy. This can be used for the educated lay person or a non-neurologist.)
      
      

   2. Teaching Slide Modules for use in Lay Seminars
      1. " What You Should Know About Epilepsy "
         (basic epilepsy information)
      2. "Practical Daily Living Guidelines"
         (safety tips for persons with epilepsy)
      3. " Epilepsy : What we can do about it"
         (proactive approach to epilepsy, patient responsibility, the value of support groups)
      4. " Cognitive and Behavioral Issues in Epilepsy"
         (common school and behavioral problems among children with epilepsy: causes and approach to management)
      
      
   3. Brochures on Epilepsy " What You Should Know About Epilepsy"
      " Ang Katotohanan tungkol sa Epilepsy " (in Filipino)
      " Epilepsy 101 "(quiz on epilepsy knowledge and practices with answer key)
      
      
   4. Television Advertisements (in Tagalog, the most commonly used local dialect)

      1. "Kim" - 15 second and 30 second versions of the Tagalog ad featuring Kim,a young boy with epilepsy in real life, set in an old Manila house , playing alone and expressing his dream to become a famous baseball player someday. The ad ends with the words, "Nagagamot ang Epilepsy" or "Epilepsy can be treated" and gives the number of the Epilepsy hotline.
         
         

      2. "Tsismis" (Gossip)- a 30 second Tagalog ad featuring close ups of mouths talking in series as they sit in a local public jeepney, gossiping about a neighbor who was just diagnosed to have epilepsy. It highlights various misconceptions of different people about the causes and prognosis of persons with epilepsy. It ends with the announcement of the Epilepsy Hotline.
         
         

      3. "Orasan"(Clocks)- two different ads featuring an alarm clock ringing violently amidst a host of clocks. It highlights the unpredictability and self-limiting nature of an epileptic attack. It also ends with an invitation to call up the Epilepsy Hotline for more information.
         
         

      4. "Epilepsy "- a 15 second ad showing the word Epilepsy shaking and trembling as in a video that is not working right. It suddenly stops when someone tries to fix the screen. It compares the condition to epilepsy being a disorder which can be fixed or treated.

      
      
   5. Radio Advertisements ( in Tagalog also)

      1. " Kisay" ( Derogatory Nickname for a Seizing/ Shaking Girl))- features a young girl being ridiculed by playmates because of her epilepsy, then being refused in school because of school teachers fears about managing the seizures It ends with the Epilepsy Hotline number.
         
         

      2. "Inday" (Visayan nickname for a young provincial lass, most often a domestic helper)) - features a young provincial lass singing out of tune for all the neighbors to hear. She is scolded by a neighbor to stop. After a few days of practicing, she learns to sing well and is praised for her singing. It highlights the correctability of epilepsy as a condition.It gives the Epilepsy hotline number.
         
         

      3. " Romy" - features a man with epilepsy in the workplace that co-employees are talking about. It showcases common public misconceptions about the disease. It gives the Epilepsy hotline number at the end.

      
      
   6. Construction of PLAE Website:
   
   
2. Media Campaign
   1. Newspaper articles/Press releases
      
      
      1. "Epileptics can still lead productive lives"
         Philippine Star, April 2, 2001
         
         
      2. " NGO seeks law to protect epileptics"
         Manila Standard, April 3,2001
         
         
      3. "Mental Health Disorder, tampok sa World Health Day"
         Kabayan, April 7, 2001.
         
         
      4. "World Health Day 2001 focuses on Mental Health"
         Department of Health Press Release,April 4, 2001
         
         
      5. "Bringing Epilepsy Out of the Shadows"
         Prevention magazine 1st Anniversary Issue July 2001
         
         
      6. " Living with Epilepsy"
         Philippine Daily Inquirer,September 1, 2001
         
         
      7. "Discrimination starts at home,says study"
         Philippine Daily Inquirer, September 1, 2001
         
         
      8. "Should we allow persons with epilepsy to drive?''
         Philippine Daily Inquirer, September 12,2001
         
         
      9. "Understanding Epilepsy"
         Manila Standard,September 28,2001
         
         
      10. "Epilepsy in the Philippines"
          Manila Standard,September 28, 2001
          
          
      11. "Epilepsy and Driving "
          Manila Standard, October 2001
          
          
      12. " Epilepsy "
          Manila Bulletin, October 2001
          
          
   2. Radio- Interviews in relation to World Health Day Celebration
      - with PLAE Officers, April 2001
      
      
   3. Television
      
      
      1. Health segment features on Epilepsy," Alas Singko y Media"
         Channel 2-ABS-CBN, September 2001
      2. TV Health Program Interview : " Kapwa Ko Mahal Ko "
         Channel 7 -GMA, September 2001
      3. TV Advertisements -"Kim" and "Tsismis" aired daily at Channel 2 daily during morning , noon and late night time slots
         Channel 2-ABS-CBN, September up to December 2001.
         
         

   4. Art Exhibit- featuring award winning art works of persons with epilepsy of the "Color My World" art contest project of the Philippine Neurological Association and Novartis Health Care Philippines held April 3-8. 2001; Museo Pambata, Manila, Philippines as part of the World Health Day Celebration
      
      

   5. "Epilepsy: Out of Shadows " PHILIPPINES booth .The campaign booth was open for three days (November 30-December 1, 2001 during the 23rd Annual Philippine Neurological Association Convention in Iloilo . It was an opportunity to inform the neurological association members and guests of the ongoing campaign. New members were recruited.
      
      

3. PLAE Organized Lay Forum / Epilepsy Seminars in Metro Manila and selected provinces :
   
   
   1. Lay Forum/Epilepsy Seminars:
      

      March 29, and August 2001:Philippine General Hospital, Manila
      Two sessions of "Focused Group Discussions Among Persons with Epilepsy"

      March 31,2001 :Makati Medical Center, Manila "Understanding Epilepsy''

      August 2001 :Lucena, Quezon "Mga Kaalaman Tungkol sa Epilepsy" (Some Information About Epilepsy)

      September 8, 2001:National Epilepsy Congress afternoon session Devoted to "Living with Epilepsy" Symposium with about 400 professionals, patients, families and caregivers, and non-governmental organizations.

      September 26, 2001-Neuroscience Week Celebration at the Philippine General Hospital, Manila, "Epilepsy Lay Forum"
      

      October 16, 18 and November 5, 2001 :Nueva Vizcaya, Luzon
      Three Epilepsy Seminars for Private School Teachers, Public School Teachers and Caregivers and Patients
      
      

   2. Appointment of Ten Provincial Awareness Volunteers for Epilepsy (P.A.V.E.) who will conduct at least two seminars for lay people in their respective provinces/regions in one year: one for schoolteachers and one for patients and care-givers.Each volunteer was provided with campaign kits complete with brochures, slide modules, films, radio advertisements and other materials.
      
      

4. Epilepsy Hotline- operational since September 8, 2001;Tel. No.(632) 8674765. During first two months of operation calls ranged from 5-11 calls per day.
   
   
5. Continuing Medical Education Programs for Neurologists and Non-Neurologists
   
   
   1. Produced Teaching Module on basic clinical epilepsy entitled, "Epilepsy: an Interactive teaching Module Designed for Non-neurologist", intended for primary care physicians and used by the PLAE for small group / round table discussions and by the Philippine Neurological Association for its regular Outreach Programs in the provinces.
      
      
   2. "National Epilepsy Congress" - the first congress solely devoted to epilepsy in the Philippines. Held September 7-8, 2001 at the Westin Philippine Plaza.
      
      
6. Collaborative Meetings with Concerned Organizations
   
   

   1. Participation in the Department of Health-WHO World Health Day Celebration (April 2001).The National Mental Health Policy which includes epilepsy as one of the priority brain disorders was issued by the Department of Health as Administrative Order No.8s.2001,on April 5, 2001.
      
      

   2. Participation in the WHO Regional (Western Pacific) Consultation on Epilepsy Meeting , November 14-15, 2001, Manila Philippines
      
      

   3. Collaboration with existing Support Groups : Philippine Foundation for Epilepsy and Epilepsy Support Group of Cebu
      
      

7. Advocacy
   
   1. Adoption of the "National Declaration Against Epilepsy", September 8, 2001
      
      
   2. Formal launch-"Epilepsy:Out of the Shadows"PHILIPPINES, September 8, 2001